Although lymphoedema is more commonly associated with adults, it can and does affect children. Primary lymphoedema — caused by problems with lymphatic system development — may be present from birth or appear during puberty. Understanding the condition and how to manage it can make a significant difference to your child's quality of life.
Types of Childhood Lymphoedema
- Congenital lymphoedema (Milroy's disease) — present at birth, usually affecting the legs and feet. Caused by inherited genetic mutations affecting lymphatic vessel development
- Lymphoedema praecox (Meige disease) — typically appears during puberty, more common in girls. Often affects one or both legs
- Secondary lymphoedema — caused by surgery, radiotherapy, infection, or trauma. Less common in children but can occur
Signs to Look For
- Swelling in a limb that doesn't go down overnight
- One limb appearing larger than the other
- Clothing, shoes, or rings feeling tighter on one side
- Skin feeling tight or heavy
- Reduced movement or flexibility in the affected area
- Recurrent skin infections
Getting a Diagnosis
If you notice persistent unexplained swelling, consult your GP and ask for a referral to a lymphoedema specialist. Early diagnosis and treatment can prevent the condition from progressing. A specialist can assess the lymphatic system and develop an appropriate treatment plan.
Supporting Your Child
- Normalise the condition — help your child understand their condition in age-appropriate language. It's a manageable condition, not something to be ashamed of
- Encourage activity — swimming, cycling, and most sports are beneficial. Work with the specialist to identify the best activities
- Build self-care skills — as children grow, gradually teach them to take responsibility for their own skin care and compression routines
- Communicate with school — ensure teachers understand the condition and any accommodations needed
- Connect with peers — online communities and support groups can help children and teens feel less isolated
Treatment for Children
Treatment follows the same principles as adult lymphoedema management — compression garments, skin care, exercise, and drainage techniques — but adapted for the child's age and development. Garments come in child-friendly sizes and colours. Regular review is important as children grow and their needs change.
At NLLP, we welcome patients of all ages and understand the unique challenges of managing lymphoedema in young people.